THE SFDF//

THE SCLERODERMA AND FIBROTIC DISEASES FOUNDATION

A 501(c)(3) nonprofit dedicated to improving the lives of all people with scleroderma and other fibrotic diseases

SCLE • RO • DER • MA

noun /ˌsklerəˈdərmə/

Generally classified as an autoimmune rheumatic disease, scleroderma is a group of rare diseases that involve the tightening and hardening of the skin and connective tissues. In some, scleroderma only affects the skin. However, in many patients, it also harms structures beyond the skin, such as blood vessels, internal organs, and the digestive tract.

FI • BRO • SIS

noun /fīˈbrōsəs/

Fibrosis is the deposition of connective tissue that occurs as a normal part of the healing process or the deposition of excess tissue that occurs as part of a pathological process. If the fibrosis results from a response to injury, it is called scarring. In the pathological accumulation of extracellular matrix (ECM) proteins, fibrosis interferes with organ function.

Scleroderma Stories Issue 3

SCLERODERMA STORIES

We recently released the third issue of Scleroderma Stories! Featuring seven scleroderma warriors from across the country, this third issue explores their scleroderma journeys. Scleroderma Stories has reached over 7,000 people in 78 different countries.

JOIN OUR PATIENT ADVISORY BOARD!

Are you a member of the scleroderma and fibrotic diseases community? The SFDF is currently looking for people to join our Patient Advisory Board. As a member of our PAB, you’ll help The SFDF determine how we can best accomplish our mission of improving the lives of all people living with scleroderma and other fibrotic diseases.