In October of 2018, Lee Yu Chuan received a diagnosis of diffuse cutaneous systemic sclerosis after months of shortness of breath and Raynaud’s symptoms. He passed away four months later.
The Scleroderma and Fibrotic Diseases Foundation (The SFDF) was founded in 2019 by his granddaughter, Cosette Wu – a high school sophomore at the time. Before her grandfather’s diagnosis, Cosette had never heard of scleroderma. After witnessing her grandfather’s battle with scleroderma, she felt empowered to address the lack of resources and support for people like him.
Since then, The SFDF has become a registered 501(c)(3) nonprofit organization with over 30 team members in 15 states and 3 countries that improves the lives of all people affected by scleroderma and fibrotic diseases on an international scale – and our story isn’t over.