PATIENT ADVISORY BOARD

To best serve the scleroderma and fibrotic diseases community, The SFDF consults with our Patient Advisory Board. Our PAB helps us determine how we can best accomplish our mission by providing insight into the experience of living with scleroderma and other fibrotic diseases.

PATIENT ADVISORY BOARD MEMBERS

Lee Wapnitsky

Seattle, Washington, United States of America

I am a scleroderma patient. I was diagnosed with limited systemic scleroderma (lSSC) in January 2017. I look forward to leveraging my professional background in nonprofit management management with my experiences as a patient to better serve the SFDF community. In my free time, I am an avid baker, dedicated plant parent, and am active in the queer community in greater Seattle.

Tiaré K Tolzmann

Hawaii, United States of America

Aloha! I’m Tiaré Kelikoa’elakauaikekai Tolzmann. I am a lifelong resident of Hawaii and of part Native Hawaiian descent. I was diagnosed with Diffuse Scleroderma in 2015. With the SFDF, I hope to spread awareness of Scleroderma and help others with fibrotic diseases feel empowered to live their best lives.

Amy Gietzen

New York, United States of America

I have been a Scleroderma Patient for most of my life. I was diagnosed at 19 years old. Being able to help others and educate individuals living with this very debilitating disease has become my life’s work. No one should have to go through this disease alone, and I have made it my mission to help as many Scleros as I can, while I can. The SFDF is a great way to reach out to people and help.

Chanel White

Seattle, Washington, United States of America

Hello! My name is Chanel and I was diagnosed with Systemic Sclerosis in 2011. I have previously volunteered as a board member for multiple non-profit foundations, served as a local support group leader, and written for a host of social outlets geared towards living with chronic disease. Through my work with The SFDF I hope to encourage patient empowerment through furthering patient education and by building meaningful connections.